Stories - Page 2 of 4 - TAPS Support

January 2, 2020January 9, 2020

TAPS Support Fast 5: Prof. Dr Liesbeth Lewi.

Welcome to a new series of blog posts by TAPS Support. Our team is passionately following research, but we felt it was time to dive deeper into the stories of the people behind Twin Anaemia Polycythemia Sequence. It’s time to introduce the TAPS Support Fast Five.

In this series, we talk to the researchers and doctors who have dedicated their lives to researching not only TAPS but other conditions and diseases affecting monochorionic twins.

December 21, 2019December 21, 2019

Happy Holidays

It’s the time of year when we start wishing each other Happy Holidays. It’s about family, and about memories – creating new ones, and also reflecting on the past.

Over the past year, our group has grown, and we’ve had many families join us. All have different stories, with different outcomes. We’ve all celebrated success together, and mourned the losses. Through TAPS, we have become a family ourselves.

December 8, 2019December 13, 2019

Dear MFM

As a patient’s MFM you are her lifeline – literally.

You have the knowledge, access, and ability to implement the resources necessary to give her pregnancy the best chance for a positive outcome.

We describe the MFM as the leaders of the monochorionic health care team. Your advanced training, experience and, again, access to vital resources often positions you as the Big Decision Maker.

December 8, 2019December 8, 2019

Introducing the BBFF Challenge

bbff challenge taps support twin anaemia polycythemia sequence

We introduced last week our new way of remembering what tests you need at appointments – Make your MFM your BBFF, and always make sure that they’re checking the brain, bladder, fluid and flow of each baby. Now, it’s time to issue our BBFF challenge!

December 3, 2019December 8, 2019

Making your MFM your BBFF

MFM BBFF TAPS Support twin anaemia polycythemia sequence testing monochorionic modi twins

Ok, TAPS Support Admin Team … Are you quite ok there? Making my MFM my BBFF? What? Are you into the Christmas “Spirit” early?

(admin note: No, we’re not! We’re just really excited about our latest campaign)

This year we want you to make the resolution to make sure your MFM is your BBFF. So let’s talk about what we mean by this.