One of the unique things about our team is that we all come from different backgrounds, with different experiences, but we share one unique passion – to raise awareness of Twin Anemia Polycythemia Sequence, and ensure that families and the wider community know all about it.
We’re also passionate about making sure that research into TAPS continues, and together we create a supportive community, filled with enthusiasm and care. We’re leading the change in how TAPS is seen in the wider world. It’s time to meet the team!
Our thriving Facebook TAPS Support Group has an amazing moderating team that looks after the group, answers your questions, and keeps the fun alive.
The Facebook team are an essential part of our online presence, supporting families, moderating posts, sharing new information, and building our community. Without them, the TAPS Support Foundation‘s Facebook group wouldn’t be as successful as it is.
They will find you resources from our pages, share their experiences, and most of all, make sure you feel at home.
From day-to-day operations to fundraising and hunting down the latest research, the Foundation’s team is always on the go. TAPS Support is a registered charity, and their dedication to connecting families and researchers to each other, as well as raising funds to continue research into Twin Anemia Polycythemia Sequence is remarkable.
Research & Advice Team
We’re fortunate to have some of the world’s leading TAPS researchers as part of our team. Leading the way in diagnostic criteria, treatments like the Solomon laser technique, to breakthroughs in long-term effects, and even naming Twin Anemia Polycythemia Sequence – we’re so proud that we work together and create an incredible team.
Visit our foundation’s main page here to learn more about our team members, or why not send us an email at firstname.lastname@example.org. We’d love to tell you more about our unique collaboration and talk with you about how we can work together.