TAPS causes so much frustration. This blog is about living with this fact.
I’ve talked about our story so many times, and I’m pretty sure most of you can recite it by heart. Born at 31 weeks with Twin Anemia Polycythemia Sequence (TAPS) in 2013, one of the best ways to raise awareness is to talk about our story on repeat. It’s guaranteed you’ll either get annoyed by me or want to join my campaign ;).
Continue reading “TAPS And Frustration: It’s A Real Struggle”
I had the privilege of being invited to the promotion and Ph.D. Defense of up-and-coming TAPS researcher, Dr. Lisanne Tollenaar this month. Here’s how the day shaped up.
One of the more interesting parts about the TAPS Support Foundation is that we get to see the other side of not only research, but we get to talk to emerging researchers and also learn the latest news on what has been discovered about TAPS. Even though it was discovered 15 years ago, and we know more than ever about it, there is still so much that we don’t know, and we continue to learn more.
Continue reading “Congratulations Dr. Tollenaar: A New Era Of TAPS Research”
One of the things about TAPS that is always thrown around is how rare it is. (It’s one of the tired myths as well – why should we screen for it because it’s so rare? ) . There’s so little common understanding about it, and even in the medical field we’re met with the argument “Oh, you had TTTS?”
Continue reading “Rare Isn’t Always Special”
In a change, we’re talking with one of our group members about her story. You might remember this shocking post we had on our social media, where she shared the horrifying fact she had been told lies throughout her pregnancy about MCA dopplers, and how her sons were born with TAPS.
Continue reading “One Mother’s Story: Lies, Denial, and Surviving TAPS.”
We’ve all asked this question: What do protein and nutrition have to do with twins, TTTS and TAPS? In this series, we’re going to explore healthy eating and some of the facts about nutrition in twin pregnancy.
In the first part, we’re going to cover some of the more commonly heard things about protein intake when you’re pregnant with twins. We’ll look at some of the science behind it and help you understand the evidence. In the second part, we’ll cover things like what you can eat, what a balanced diet looks like, and creative ways for getting that extra protein in your diet.
Continue reading “Protein and Nutrition in TTTS and TAPS”