After coming out of NICU with my twin girls in one piece but my mental health in tatters, I looked forward to a life for my twins with tentative positivity. I hoped that the white knuckle ride of multiple pregnancy was behind me. I avoided all the twin and multiples groups I had joined because, in all honesty, I was afraid of what I would read and the trauma it would bring up in me.
This is my story of how advocating for a different diagnosis helped me to heal.
Continue reading “Kitty & Willow: How A Diagnosis Changes Everything.”
It’s time to talk TAPS staging systems! As you know, research into Twin Anemia Polycythemia Sequence (TAPS) is an evolving part of science and the medical world. For a disease described only 15 years ago, we know more about it than ever, including things like the long-term effects, and international trials are working on finding the best treatment for it. Of course, as we understand more about TAPS, the diagnosis and treatments become more refined. So let’s look at the (new) Leiden staging system for TAPS, and talk a little about why it’s here, and also a little about the history of it.
Continue reading “Introducing The New TAPS Staging System”
The team here admit to one thing – we’re so passionate about getting MCA dopplers done that we push and push and push information at you, and tell you you MUST get them done. We give you the tools to advocate and help you with wording and help bust those myths about TAPS screening. And then, all of a sudden, you get one bad MCA doppler, and everything seems so dramatic.
Continue reading “One bad MCA doppler means…”
In a change, we’re talking with one of our group members about her story. You might remember this shocking post we had on our social media, where she shared the horrifying fact she had been told lies throughout her pregnancy about MCA dopplers, and how her sons were born with TAPS.
Continue reading “One Mother’s Story: Lies, Denial, and Surviving TAPS.”
You’ve seen that we post a lot about the importance of MCA Dopplers. In fact, we’re kind of obsessive, a little annoying, and sometimes downright blunt when it comes to them. (You can read a little more about how TAPS is diagnosed here.)
Continue reading “Here’s the facts on MCA Dopplers”