A post from a parent who went down the path of selective reduction.
This is not is a challenge to your story, or your choice, it’s just my story. It’s taken me 18mths to build up the courage to put my name to this.
I turned to online groups in 2020 when our darling baby B, was diagnosed with sIUGR around the 19th week of pregnancy. Our MFM and care team presented all options and of course we fought hard for both our girls. Over the next few weeks we had twice-weekly monitoring, at this point we had a 37% discordance (growing)and she was <1st%ile.
After coming out of NICU with my twin girls in one piece but my mental health in tatters, I looked forward to a life for my twins with tentative positivity. I hoped that the white knuckle ride of multiple pregnancy was behind me. I avoided all the twin and multiples groups I had joined because, in all honesty, I was afraid of what I would read and the trauma it would bring up in me.
This is my story of how advocating for a different diagnosis helped me to heal.
Did you catch Stephanie talking with Natalie Diaz about TAPS on Twiniversity earlier this month? They sat down to talk all things TAPS, and help bust some myths, as well as talk about the important stuff you need to know.
Watch the full interview here: Learn About TAPS With Twiniversity.
Want more information about TAPS, or want to connect with a community of families who have been there? Join our Facebook group, or get in touch.
Welcome to the latest in our Fast Five blog posts. TAPS Support passionately follows research, and with this year marking 15 years of TAPS research, it’s essential to highlight the researchers behind Twin Anemia Polycythemia Sequence. In this instalment, we’re interviewing Dr. Mert Ozan Bahtiyar, from the Yale School of Medicine
Welcome to the TAPS Support Fast 5, our series dedicated to introducing you to the researchers and doctors behind Twin Anemia Polycythemia Sequence across the world. In this installment, we’d love to introduce you to Dr. Femke Slaghekke, from the Leiden University Medical Centre in Leiden, the Netherlands.