Welcome to a new series of blog posts by TAPS Support. Our team is passionately following research, but we felt it was time to dive deeper into the stories of the people behind Twin Anaemia Polycythemia Sequence. It’s time to introduce the TAPS Support Fast Five, and this week we’re introducing Prof. Dr Dick Oepkes
In this series, we talk to the researchers and doctors who have dedicated their lives to researching not only TAPS, but other conditions and diseases affecting monochorionic twins.
Continue reading “TAPS Support Fast Five: Dr Dick Oepkes”
On our social media and in our group recently we asked the question “What word/s do you dislike the most?”
It sparked some interesting conversations, and it appears that the word “moist” is pretty universally disliked. You can’t argue with a statistic like 18/100 people stating that they don’t like it!
Continue reading “Why “fine” can be a bad word.”
As a patient’s MFM you are her lifeline – literally.
You have the knowledge, access, and ability to implement the resources necessary to give her pregnancy the best chance for a positive outcome.
We describe the MFM as the leaders of the monochorionic health care team. Your advanced training, experience and, again, access to vital resources often positions you as the Big Decision Maker.
Continue reading “Dear MFM”
Ok, TAPS Support Admin Team … Are you quite ok there? Making my MFM my BBFF? What? Are you into the Christmas “Spirit” early?
(admin note: No, we’re not! We’re just really excited about our latest campaign)
This year we want you to make the resolution to make sure your MFM is your BBFF. So let’s talk about what we mean by this.
Continue reading “Making your MFM your BBFF”
Traditionally, health care advocacy groups, like ours, begin with people fighting to have established clinical guidelines followed. But what happens when you’re starting from scratch, and there are very few established clinical guidelines, and an establishment that refuses to accept research?
Continue reading “TAPS Support: A New Type of Advocacy”