Having twins is not always black and white.
Where on earth do you begin when it comes to advocating for long term care for TAPS? It’s a long, tedious road at times, and sometimes even exhausting. Advocating for TAPS starts with some basics, and Stephanie shared her tips on how to get things moving.
Continue reading “Navigating Appointments: Tips For Advocating For TAPS Followups.”
One of the things about TAPS that is always thrown around is how rare it is. (It’s one of the tired myths as well – why should we screen for it because it’s so rare? ) . There’s so little common understanding about it, and even in the medical field we’re met with the argument “Oh, you had TTTS?”
Continue reading “Rare Isn’t Always Special”
In a change, we’re talking with one of our group members about her story. You might remember this shocking post we had on our social media, where she shared the horrifying fact she had been told lies throughout her pregnancy about MCA dopplers, and how her sons were born with TAPS.
Continue reading “One Mother’s Story: Lies, Denial, and Surviving TAPS.”
Welcome to a new series of blog posts by TAPS Support. Our team is passionately following research, but we felt it was time to dive deeper into the stories of the people behind Twin Anaemia Polycythemia Sequence. It’s time to introduce the TAPS Support Fast Five, and this week we’re introducing Prof. Dr. Enrico Lopriore.
In this series, we talk to the researchers and doctors who have dedicated their lives to researching not only TAPS but other conditions and diseases affecting monochorionic twins.
Continue reading “TAPS Support Fast 5: Prof. Dr. Enrico Lopriore”
Welcome to a new series of blog posts by TAPS Support. Our team is passionately following research, but we felt it was time to dive deeper into the stories of the people behind Twin Anaemia Polycythemia Sequence. It’s time to introduce the TAPS Support Fast Five, and this week we’re introducing Dr. Mariano Lanna.
Continue reading “TAPS Support Fast Five: Dr Mariano Lanna”