TAPS Support

May 3, 2022May 17, 2022

Selective Reduction: A Letter From A Parent.

selective reduction taps twins twin anemia polycythemia sequence twins support

A post from a parent who went down the path of selective reduction.

This is not is a challenge to your story, or your choice, it’s just my story. It’s taken me 18mths to build up the courage to put my name to this.

I turned to online groups in 2020 when our darling baby B, was diagnosed with sIUGR around the 19th week of pregnancy. Our MFM and care team presented all options and of course we fought hard for both our girls. Over the next few weeks we had twice-weekly monitoring, at this point we had a 37% discordance (growing)and she was <1st%ile.

February 29, 2020May 19, 2020

Rare Isn’t Always Special

taps support rare disease twin anemia polycythemia sequence

One of the things about TAPS that is always thrown around is how rare it is. (It’s one of the tired myths as well – why should we screen for it because it’s so rare? ) . There’s so little common understanding about it, and even in the medical field we’re met with the argument “Oh, you had TTTS?”

January 7, 2020May 19, 2020

Why “fine” can be a bad word.

On our social media and in our group recently we asked the question “What word/s do you dislike the most?”

It sparked some interesting conversations, and it appears that the word “moist” is pretty universally disliked. You can’t argue with a statistic like 18/100 people stating that they don’t like it!

October 3, 2019May 23, 2020

Monochorionic Twins and Reproductive Rights

Monochorionic twins reproductive rights TAPS twin anaemia polycythemia sequence TAPS support

In a society where the rights of the unborn are a hot topic, and often vehemently protected, we have to ask ourselves a question –

Why do some unborn babies have more of a right to survival than others?