Where on earth do you begin when it comes to advocating for long term care for TAPS? It’s a long, tedious road at times, and sometimes even exhausting. Advocating for TAPS starts with some basics, and Stephanie shared her tips on how to get things moving.Continue reading “Navigating Appointments: Tips For Advocating For TAPS Followups.”
As you know, research into Twin Anemia Polycythemia Sequence (TAPS) is an evolving part of science and the medical world. For a disease described only 15 years ago, we know more about it than ever, including things like the long term effects and international trials are working on finding the best treatment for it. Of course, as we understand more about TAPS, the diagnosis and treatments become more refined. So let’s look at the new staging system for TAPS, and talk a little about why it’s here, and also a little about the history of it.Continue reading “The New TAPS Staging System”
The team here admit to one thing – we’re so passionate about getting MCA dopplers done that we push and push and push information at you, and tell you you MUST get them done. We give you the tools to advocate and help you with wording and help bust those myths about TAPS screening. And then, all of a sudden, you get one bad MCA doppler, and everything seems so dramatic.Continue reading “One bad MCA doppler means…”
Ok, TAPS Support Admin Team … Are you quite ok there? Making my MFM my BBFF? What? Are you into the Christmas “Spirit” early?
(admin note: No, we’re not! We’re just really excited about our latest campaign)
This year we want you to make the resolution to make sure your MFM is your BBFF. So let’s talk about what we mean by this.Continue reading “Making your MFM your BBFF”