Having twins isn’t always black and white.
Sometimes you have to see red to make a change.
TAPS Support is an advocacy group focussed on changing the way monochorionic twin pregnancies are diagnosed, handled and treated, as well as raising the profile of Twin Anaemia Polycythemia Sequence (TAPS).
A relatively new disease only recently separated from TTTS, TAPS is often misunderstood, misdiagnosed, and perhaps the worst of the scenarios, a missed diagnosis.
What TAPS Support Does.
We advocate for consistent, competent care for all monochorionic twins, and are driven by a passion for creating awareness for TAPS and its complications, treatments, and care.
Our volunteers create a bridge from research to patient, ensuring that everyone can understand and advocate for correct and appropriate care for themselves.
TAPS Support also runs Facebook groups to connect patients and families, and social media awareness campaigns with the latest research, important findings, discussion topics and videos on TAPS related topics.
We are determined to raise the profile of TAPS across the world and ensure that people are aware that there are treatments, and most importantly, that you are not alone in your diagnosis.
We support research and researchers, understanding that they are crucial to our quest.
The most important part of our mission is that we make people aware that not all twin pregnancies are the same. You are your babies’ advocate for care, and we will equip you with the resources you need to get that minimum standard of care.
Want to know more? Contact us at email@example.com